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Support

Finding out that your child has cancer is always shocking. It is also life changing. Retinoblastoma is very rare and the chances of meeting another person who has had it, in your own community, are very small.

The Childhood Eye Cancer Trust was initially formed to provide information and support to families of children who were newly diagnosed but has now extended its role to include individuals at all stages of life, as they live with the consequences of retinoblastoma.

This section will provide you with information on the role of our Family Support Worker and our network of Family Contacts. You will also be able to read about the experiences of some of our members and find out where to get useful equipment.

Donate Now

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URGENT Travel update for Annual Day

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Advice for concerned parents

Click here for what to do if you think you have seen a symptom of retinoblastoma.Go