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About Us

The Childhood Eye Cancer Trust has been a registered charity since 1987 and was formerly known as The Retinoblastoma Society.

Our aims are:

  • To provide information and support to individuals and families with Rb
  • To raise awareness of Rb
  • To raise funds for research
  • To influence professional bodies to ensure optimum service for Rb patients

We achieve these by:

C hallenging the way in which healthcare is delivered in order to derive optimum service delivery for patients. Funding research projects to extend the boundaries of knowledge.

H elping those affected by retinoblastoma by providing support and information, access to a self-help network and links to other related organisations.

E ducating health professionals and others about retinoblastoma and the implications for genetics and other cancers through awareness raising campaigns, literature and training.

C aring for the individual and providing services tailored to their needs at different life-change stages.

T ransforming public perception of eye cancer in children, to raise awareness and take away the fear.


This section will give you some information about the people involved in our charity, the treatment centres and how to get in touch with us.

Donate Now

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URGENT Travel update for Annual Day

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Advice for concerned parents

Click here for what to do if you think you have seen a symptom of retinoblastoma.Go