Trustees
Philip Moore (Chair)
 I became a trustee of the Childhood Eye Cancer Trust following my daughter's treatment for Rb and I am now proud and honoured to be chair of the Board of Trustees. In my work life I am Group Finance Partner and Chief Risk Officer of Pension Corporation LLP and a Non Executive Director of RAB Capital plc. Formerly I was Group Chief Executive of Friends Provident plc and a Non Executive Director of F&C Asset Management plc. I held previous positions in HMRC, AMP (UK), NPI and PricewaterhouseCoopers, initially in London and then based in Hong Kong as the partner responsible for the firm's East Asia insurance consultancy practice. My interests are flying, education, travel and of course my young family!
Steve Tyler (Vice Chair)
 Steve Tyler is Head of Innovation and Disability Access at Royal National Institute of the Blind. He has worked for the organisation for 9 years. Steve had bilateral Rb himself, he is keen to give something back to the charity.
In his current role, he is responsible for bringing innovative services and solutions to market that are commercially sustainable. This role is centred on business propositions to the commercial sector that bring about accessible services or products for the blind whilst being attractive as a commercial proposition. Examples of this include Pure DAB (IVOX) tuner, mobile telecoms accessibility products and access to pharmaceutical packaging to name but a few.
His academic background of Psychology, research in Artificial Intelligence, and post-graduate management qualifications give him the ability to translate an idea in to a workable proposition.
He currently leads a section of RNIB at present, is a board member of two companies (a trading company and a development company).
Andrew Spillane (Treasurer)
 I am a qualified accountant who has accumulated wide-ranging international business experience whilst performing several senior financial management roles in a multi-national group of companies.
I hold a Masters of Business Administration from London Business School, a Graduate School of the University of London, a Bachelor of Commerce from the University of Western Sydney, Australia and the designation of Certified Practising Accountant of CPA Australia.
I have no personal experience of Rb, however I have experience working with young people who suffer disadvantage from my past charitable activities.
My personal interests include running, skiing, travel, Roman and Italian history, motor sport, cricket & gardening – pursuits that I actively engage in when not enjoying spending time with my wife and 20 month-old son!
I am very pleased to be serving as a Trustee of the Childhood Eye Cancer Trust and to have the opportunity to deploy my skills and experience in advancing the important and worthwhile aims of the charity.
Dr Andy Charley
Dr Andy Charley
 I am a part time General Practitioner in Margate, Kent. I am also a G.P with Special Interest in Ophthalmology (GPwSI) helping to improve local primary care eye services in East Kent.
I am married to Nancy and we have five children from 10 to 18years of age.
We have travelled around Africa with a medical charity, Links International, but this is my first official trustees position.
I am a keen cyclist and take an active interest in environmental issues both locally and globally.
I also hold the position of chair of the Childhood Eye Cancer Trust Research Sub committee.
Warren Newman
.jpg) Warren Newman is Fellow of the Chartered Institute of Public Relations and a former President. He has managed public relations departments in London local government, the National Farmers' Union, the UK Atomic Energy Authority and Vivendi (UK).
He has been Director General of two trade associations—Bacta, which represents the pay-to-play leisure industry, and deals with gambling issues; and the British Market Research Association.
For the past few years he has been working as an interim public relations executive and consultant handling assignments for a range of clients, mainly in the not-for-profit sector. He is now retired.
Philippa Godden
'I became a Trustee of CHECT in Sept 2000. My daughter, Harriet had been diagnosed with bilateral Rb just before her first birthday in May 1999. She had to have her left eye enucleated, and received chemotherapy to treat a tumour in her right eye. Thankfully the tumour responded to the treatment, and though the sight in her right eye is not perfect, she leads a pretty normal life.
I am a food scientist by training, and have been involved in the cheese industry for the last 20 odd years. A fascinating foodstuff, so much variety and so many interesting characters involved in its production. Leisure pursuits include playing the occasional game of tennis and gambling on the stock market in a ladies only investment club.'
Sarah Hollyer
 I am a mother of four children aged from 9 to 27. Three of them inherited Rb from me. I have been involved with CHECT as a member of the Management Committee and as a Family Contact for many years and have made friends and met a wide variety of interesting people.
Three years ago I was retired through ill health, having worked for 27 years at a nursery school in Ealing. I am very proud of my Welsh heritage and I enjoy walking, theatre cooking, eating out and socialising with friends.
I hope to continue working for the charity.
Ffion Miles
 I was diagnosed with bilateral retinoblastoma as a baby in 1975/6. I was then diagnosed with an osteosarcoma (bone cancer in my knee) in 1990 and have an extensive knee prosthesis.
I attended mainstream education at Welsh language primary and secondary schools before gaining a 2: I in Law at Aberystwyth University. I then gained a Masters in International Politics before passing my legal practice exams at Cardiff Law School. I thoroughly enjoyed my time in education and though encountered some difficulties I received a lot of support from my teachers, local authority, parents and friends. All necessary equipment and support was provided.
Having worked as a trainee solicitor for a while, I decided this was not the career for me and joined the BBC on a work placement scheme. I am now a community researcher for the BBC's community websites for North West Wales (one Welsh, one English) and greatly enjoy my work.
My other interests are singing (member of choir), travelling, reading, socialising with friends and live music.
I was very happy to become a Trustee of CHECT as I am keen to represent the views of younger RB survivors (and those who have gone on to be diagnosed with further tumours) and share any advice/knowledge I have to further the interests of the charity.
Stuart Ball
 At the age of 18 months I was diagnosed with Rb and I lost my right eye. I still had partial sight in my left eye, but unfortunately only for a limited time. Some years later, cancer was diagnosed again and I had my left eye removed.
Since becoming a disabled person in 1997 I have gone from strength to strength in my personal development. Using self-motivation and a continuing will to succeed. I have achieved an excellent level of education, and gained numerous transferable skills. I am currently making a positive difference to the lives of disabled students, through my diverse role as a Study Skills & Technology Assessor for University of Wales Institute Cardiff (UWIC). Prior to accepting this challenging position, I made significant contributions to increasing the overall accessibility of information/services for blind and partially sighted people throughout Wales, as a Project Co-ordinator for RNIB Cymru. I have also been one of Admiral's top-10 Sales Executives.
I am extremely proud to be a CHECT Board member.
Gary Atherton
 When I was two years old I was diagnosed with bilateral retinoblastoma and so lost my sight – in the 1950s, there was no treatment which might have saved my sight. I was treated at St Paul's eye hospital in Liverpool.
I was educated at special schools and later went to university. Thereafter I trained for social work and became a probation officer in 1984. I have been a Senior manager for the in London Probation Service for the last 18 months. I joined in 1984 and have nearly 23 years of service. I am married with a 12 year old daughter, Lily is not affected by Rb.
I am delighted to be a member of the Board of the Childhood Eye Cancer Trust and I hope to make a contribution in the years to come. I bring to the Board a masters degree in Social Work, skills in HR, finance, management and of running organisations.
Mark Percival
 I am very pleased to be involved with CHECT. Having had my own experience with Rtb I wanted to be involved with an organisation which helps families affected by Rb.
I qualified as a lawyer in 1999 and have spent most of my career as an in-house legal advisor. My work covers large scale commercial contracts and I work with lots of other professionals including accountants, insurance advisors and technical engineering specialists on projects such as a county wide 25 year street lighting project! I enjoy my project based work and I enjoy living in London especially visiting friends or enjoying a weekend stroll along the Southbank or through Hyde Park.
I look forward to working with Libby and the CHECT team
Dr Rowan Miller
 I was treated for unilateral retinoblastoma aged three with enucleation. I am delighted to be a trustee again having served on the committee from 2001 to 2004. I studied medicine at Oxford University and Guy's and St Thomas' hospitals. I am training in oncology and I work as a specialist registrar at University College Hospital, London.
I enjoy travelling and have previously worked in Tanzania and Bangladesh. I am training for a half marathon and I am an enthusiastic, if untalented skier.
Lisa Neilson
 My name is Lisa Neilson and I am a mother of two girls, Emily and Charlotte and I live in Edinburgh with my husband Adam. I work full time in Financial Services as a portfolio manager in the IT sector.I was diagnosed with an eye tumour at the age of 18 months and lost my left eye. Until I was in my teens my family were not aware that this was retinoblastoma. After this revelation I became involved with CHECT and have been volunteering/providing family support since my early twenties. My children are now undergoing regular eye checks but thankfully are clear.
On a personal note I love spending time with my family, music/new bands, taking walks and more recently, enjoying caravanning holidays in the UK as well as the all important breaks in the sunshine.
I am delighted to be able to contribute to CHECT as a trustee and I hope to bring my professional management and IT skills in addition to my life experiences of Rb. |
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Advice for concerned parents |
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Click here for what to do if you think you have seen a symptom of retinoblastoma.
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