We are the UK’s only charity dedicated to supporting children, families and adults affected by retinoblastoma (Rb).
Retinoblastoma is a rare form of eye cancer that typically affects children under six, the impacts of which can last a lifetime.
For over 35 years we’ve been making a real difference to people’s lives by providing lifelong support, raising awareness and funding vital research.
2500+
hours of one-to-one care provided across the year.
1300+
face-to-face sessions provided every year.
200+
children receiving treatment or aftercare at any one time.
Childhood Cancer Awareness Month – Going for Gold!
September is Childhood Cancer Awareness Month! The internationally recognised symbol of childhood cancer is the gold ribbon, which is why this September CHECT is ‘going for gold’! Find out how you can get involved below.
Take on a challenge during September!
We’re challenging you to run, swim, walk, cycle (anything you like) for 122 miles in 30 days – the distance between The Royal London Hospital and Birmingham Women’s and Children’s Hospital, the only two hospitals in the UK treating retinoblastoma.
Signs and symptoms
Are you worried that your child is showing a symptom of retinoblastoma?
Take them to your GP, a local optician / optometrist or an ophthalmology (eye specialist) department and have their eyes examined as soon as possible.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying.
Find out what causes white eye and what to do if you see it.
Retinoblastoma stories & news
Jessy’s story: “Our toddler said her eye hurt – it turned out to be cancer”
A mum from London is urging other parents to...
Christmas card competition 2025
Would you like to see your own artwork featured on our charity Christmas cards this year?
InFocus Winter 2025 – Plain Text Version
We’re pleased to present the latest edition of...
Donate today
to help us achieve our goals to raise awareness, fund research and supporting those affected by retinoblastoma.
Fund a Pip the Penguin toy for a child who has had their eye removed to help them come to terms with their artificial eye.
Support travel expenses for hospital visits, helping families manage the additional financial burden associated with cancer.
Fund five support sessions with a dedicated CHECT support worker to help lessen the impact of a retinoblastoma cancer diagnosis.
Fund an event to bring together those affected by retinoblastoma so that they feel supported and less isolated.
Become a member of Childhood Eye Cancer Trust
It is easy and FREE to become a member of the Childhood Eye Cancer Trust. We have options for parents, teenagers, adults and grandparents. This will gain you access to our support, grants, events, regular updates and much more.