Below you will find a collection of emotive and inspirational stories from families affected by retinoblastoma (Rb) and visual impairment. We are extremely grateful to our members for sharing their thoughts with us and always welcome new accounts. Email
for more information.
Angie Donovan talks openly about her decisions and her reasons for using Pre-implantation Genetic Diagnosis (PGD) with her second child.
Kaye Garwood's son Greg was diagnosed with unilateral Rb and underwent enucleation. He then became very short sighted in his remaining eye. She offers advice for parents in a similar situation.
Ann's grandson Joshua was diagnosed with Rb in 2001. Ann tells us, frankly and honestly, about how Rb has affected her life.
Roger's grandson Joshua was diagnosed with Rb in 2001.Roger shares his experiences and shows us how Rb can affect all generations.
Kellie’s son Luca will be seven this year and has had the ‘all clear’ on his first six-monthly check-up in London. It’s been a rollercoaster ride since Luca was diagnosed as a baby.
Drummer and father of four John Ramm writes about leading a full and active life as someone who has lost their sight due to Rb.
'You can't always have what you want, can you Mum', Kelsey told Jo Trevett, upon learning he would lose his second eye, proving he may have lost his vision but could still see a positive side.
I have a degree and volunteer for four groups. I've tackled an aerial assault course, flown in a two-seater plane and have driven around a race track. I had Rb at 13 months and am now blind.
You will find more stories from our members in other areas of the My Story section.