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Visually impaired

Below you will find a collection of emotive and inspirational stories from families affected by retinoblastoma (Rb) and visual impairment. We are extremely grateful to our members for sharing their thoughts with us and always welcome new accounts. Email  This e-mail address is being protected from spambots. You need JavaScript enabled to view it. for more information.

Angie Donovan

Angie Donovan talks openly about her decisions and her reasons for using Pre-implantation Genetic Diagnosis (PGD) with her second child.

Kaye Garwood

Kaye Garwood's son Greg was diagnosed with unilateral Rb and underwent enucleation. He then became very short sighted in his remaining eye. She offers advice for parents in a similar situation.

Ann Young

Ann's grandson Joshua was diagnosed with Rb in 2001. Ann tells us, frankly and honestly, about how Rb has affected her life.

Roger Young

Roger's grandson Joshua was diagnosed with Rb in 2001.Roger shares his experiences and shows us how Rb can affect all generations.

Kellie Ascheri

Kellie’s son Luca will be seven this year and has had the ‘all clear’ on his first six-monthly check-up in London. It’s been a rollercoaster ride since Luca was diagnosed as a baby.

John Ramm

Drummer and father of four John Ramm writes about leading a full and active life as someone who has lost their sight due to Rb.

Jo Trevett

'You can't always have what you want, can you Mum', Kelsey told Jo Trevett, upon learning he would lose his second eye, proving he may have lost his vision but could still see a positive side.

Justine Duffy

I have a degree and volunteer for four groups. I've tackled an aerial assault course, flown in a two-seater plane and have driven around a race track. I had Rb at 13 months and am now blind.

You will find more stories from our members in other areas of the My Story section.

Back to My Story