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Below you will find a collection of emotive and inspirational stories from families affected by unilateral Rb in various different ways. We are extremely grateful to our members for sharing their thoughts with us and always welcome new accounts. Email This e-mail address is being protected from spambots. You need JavaScript enabled to view it. for more information.


Grant Rees

Grant lost the sight in his left eye at four years old, but that didn't stop him becoming the youngest ever Junior National Autograss Champion and the first ever winner of the Junior British Rallycross Championship.

Carole Ellison

As well as giving her version of events as a mother of a child diagnosed with Rb, Carole also goes on to explain how she picked up and dealt with her young daughter's self conscious behaviour.

Ben Revill

Ben's son William was diagnosed, aged four, with retinoblastoma just before he was due to start school. Ben reveals how friends, family and CHECT helped them adjust to life with an artificial eye.

Victoria Payne

Victoria's son Christopher was diagnosed with unilateral Rb after she and her husband learnt about the condition on a TV drama. Christopher went on to have an enucleation and chemotherapy.

Kaye Garwood

Kaye Garwood's son Greg was diagnosed with unilateral Rb and underwent enucleation. He then became very short sighted in his remaining eye. She offers advice for parents in a similar situation.

Pauline Dawson

When Pauline's daughter Emily was diagnosed with Rb and underwent chemo and enucleation, Pauline was naturally concerned about how she would cope at school if she looked "a bit different".

Maria Tattersall

Maria was diagnosed with Rb in her right eye when she was a baby and had her eye removed. She offers advice on how to cope with an artificial eye throughout school years and into adulthood.

Elaine Birtwistle

Elaine was diagnosed with unilateral Rb, treated with enucleation, in the sixties. She reveals how growing up with an artificial eye has impacted her life and left her with one regret.

You will find more stories from our members in other areas of the My Story section.

Back to My Story