• EU e-Privacy Directive

    This website uses cookies to manage authentication, navigation, and other functions. By using our website, you agree that we can place these types of cookies on your device.

    View e-Privacy Directive Documents


Below you will find a collection of emotive and inspirational stories from families affected by retinoblastoma (Rb) and chemotherapy. We are extremely grateful to our members for sharing their thoughts with us and always welcome new accounts. Email This e-mail address is being protected from spambots. You need JavaScript enabled to view it. for more information.

Charlene Williams

Charlene Williams threw herself into fundraising when her baby son was diagnosed with bilateral retinoblastoma. Charlene explains how the distraction helped her cope through treatment.

Christina Rozeik

Christina documents how their family coped when six-month-old son Alexander was treated for retinoblastoma with six rounds of chemotherapy.

Samantha Rouse

In 2009 Samantha's baby son was soon diagnosed with bilateral retinoblastoma. Samantha tells her moving story of how they coped as their baby went through chemotherapy.

Victoria Payne

Victoria's son Christopher was diagnosed with unilateral Rb after she and her husband learnt about the condition on a TV drama. Christopher went on to have an enucleation and chemotherapy.

Kellie Ascheri

Kellie’s son Luca will be seven this year and has had the ‘all clear’ on his first six-monthly check-up in London. It’s been a rollercoaster ride since Luca was diagnosed as a baby.

Veronica Street

Veronica's story will strike accord with a lot of parents. Her son Daniel was bullied at school. Here, she gives us her account of what happened and tells us how they coped.

Bill Cooper

As a doting grandfather, Bill struggled to come to terms with his grandson's diagnosis. His family have been through difficult times but here he explains some good has come from this.

Ingrid Svarcina

Ingrid, from Austria, shares her story about her son Florian, diagnosed with Rb in 2001. Ingrid describes the heartbreaking decisions parents face making to save their children's sight.

Jane Harrison

Jane Harrison shares her experiences of chemotherapy after her daughter, Olivia was diagnosed with Rb at only four months.

Ronnie Beard

Ronnie Beard, from Memphis, in the US, wanted to share the story of his daughter Caroline’s diagnosis and treatment and his family's heartache during those early months.

You will find more stories from our members in other areas of the My Story section.

Back to My Story