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Members' conference venue confirmed

Our members day will be held

CHECT Members’ Conference 2013

 

On Saturday 14th September we plan to hold our CHECT Members’ Conference to which all members are invited. The conference is to be held in London (venue to be confirmed) and will be in a slightly new style from our regular Member’s Days.

cat ashamed

 

Cute cat competition

We will be holding two parallel sessions throughout the day: one for adults and one for teenagers. We will have several Rb experts and medical professionals presenting the sessions and leading discussions and Q&A on various topics. The day will be split up into discussions which will cover a range of Rb related subjects and we hope to cover the following: PTSD, socket work, research, artificial eyes, NAES, new treatments from around the world, eye transplants, awareness & fundraising and possibly a session with Changing Faces, who are a charity for people and families whose lives are affected by conditions, marks or scars that alter their appearance.

 

 

 

There will also be time for socialising with other parents and lunch will be provided. Our pdf here.

 

 

 

We will be in touch when the details are finalised and we are taking bookings but, in the meantime, save the date!

 

 

 

Wimbledon Auction & Supper

Join us for an intimate Auction and Supper to raise funds for CHECT.

On June 8, Trustee Ben  Revill will be hosting an Auction and  Dinner with guest auctioneer, Mr Hugh Edmeades, Christie's International Director, Auctioneering. The event will be held at St Mary's Garden Hall, Church Road, Wimbledon SW19 7BP and tickets will be £40 per head. Ticket price includes pre supper drinks, generous amounts of wine with the meal (though not unlimited) and an authentic, freshly prepared Asain  buffet supper followed by cheesecake or fruit salad.

Already the prizes up for auction include our beautiful handcrafted rocking horse, a french chalet holiday, private flights and sporting memorabilia and there will be many many more.

If you'd like to join us on the evening then email This e-mail address is being protected from spambots. You need JavaScript enabled to view it. to reserve your tickets and send a cheque made payable to Childhood Eye Cancer Trust  or click onto the justgiving page to pay online http://www.justgiving.com/Chect-Staff but hurry tickets are limited to 80 for this select gathering!

Nominate your child for a CHECT Champion award

Credit Suisse logoDo you know a little champion deserving of a CHECT award?

Every parent of a child affected by Rb is acutely aware of the disruption and upset treatment and check-ups can have on not just the patient, but on their siblings too.

Our CHECT Champion awards intend to recognise the bravery and courage of children affected by Rb. This may be children who have had screening or treatment for Rb or their siblings.

We are keen to recognise the outstanding bravery and courage shown by all children affected by Rb and, thanks to the generosity of Credit Suisse, we are now able to invite nominations to the CHECT Champion awards.

The award

We are very grateful to our friends at Credit Suisse for making the CHECT Champion awards possible. The awards are designed to recognise the achievements and bravery of a child affected by Rb. This could be in any number of ways. Perhaps they have been brave in clinic, overcome a tricky hurdle with their artificial eye or shown outstanding patience when their brother or sister has needed to attend hospital.

Each child will receive a certificate and a presentation medal recognising their achievements. They will also receive a small gift to accompany their award. Ideally, the child will be of an age to be able to understand the nature of the award.

The child, along with their family and nominating person, will be invited to attend a regional CHECT event to be presented with their awards. If this is not possible then awards will be posted out to the child’s home address.

Raising awareness of Rb and the warning signs is a major part of the work we do. We would like to share news of your child’s award with the media to help educate other parents about the condition and hope you will be happy to participate in this.

Download a nomination form and terms and conditions here.

Please complete the nomination form and read the terms and conditions attached to the form and return to us by post. Address your nomination(s) to CHECT Champion Awards, Childhood Eye Cancer Trust, Royal London Hospital, Whitechapel Road, London, E1 1BB.

Marathon Runners 2013

 

Check out our intrepid team of Marathon Runners not only training hard but raising funds too:-

Julian & Alison Wyatt

Ricardo Argiolas

Sarah Adamson

Phil Richards

Claire Flitton

Caroline Bannatyne

Sharon McGrath

Andrew Reynolds

Jamie Jolly

Darren Rodriguez

Steve Pickering

Tony Boon

Billy French

David Grant

 

Not a runner but would still like to get the buzz – without all the hard work? Then join our Cheering Squad of friends and relatives of the runners who go along and cheer them on the day. Give Fiona a call on 020 7377 5578 or email This e-mail address is being protected from spambots. You need JavaScript enabled to view it.

FREE sports goggles from Vision Express - DO NOT MISS OUT!

EXTENSION TO VOUCHER DATE

We understand a few members have had difficulties obtaining an appointment for fitting within the time specified on the voucher. Vision Express have confirmed that the sports goggles vouchers will be accepted by Vision Express stores beyond April 30th provided initial contact is made by you with the store before the end of this month (April) and that an appointment is made as soon as possible once the fitting kits are available.
This arrangement has been confirmed by Vision Express.

If you do have any further problems it may be helpful to print off this email and take it along with you. Please let us know if you experience any further problems. Please email or call us if you experience any further problems.

 

FREE sports goggles for CHECT members
- deadline and terms apply

Many of you with school age children will be aware that some children require extra protection for their eyes after treatment for Rb. It is something we get asked about time and again. Parents often find sports goggles are often not readily available in opticians and as they require special lenses to give your child maximum protection they can be very costly too.

We have talked to our corporate partners Vision Express about this and we are delighted to announce they are able to offer a FREE pair of sports goggles to CHECT members who require them for school. These Progear goggles are the latest design, fitted with the safest lenses for your child.

Jonathan Lawson, Chief Executive Officer at Vision Express said, "As a parent myself, I can only imagine the overwhelming need to protect a child affected by Rb. I also understand the value and importance of sporting activities for children. I do hope that by giving CHECT members the opportunity to obtain a pair of protective goggles from Vision Express, it will go some way to enable their child to enjoy all childhood activities."

In order to benefit from this fantastic offer, please contact the CHECT office by emailing This e-mail address is being protected from spambots. You need JavaScript enabled to view it. where we can issue you with a voucher, as soon as they become available. Then, take your child to any Vision Express store between 1st and 30th April 2013 and explain you would like to have them measured for a new pair of CHECT sports goggles. Please do not make enquiries in store before receiving your voucher from CHECT.

Once you have placed your order Vision Express will contact you directly to let you know when they are ready to collect. Please note goggles will not be ordered until after the deadline to take up this offer has passed. Only one pair of goggles will be supplied per child affected by Rb.

Terms and conditions:

This offer is available to CHECT members only on presentation of this voucher. Membership of CHECT is free and you can join online here http://www.chect.org.uk/cms/index.php/about-us-page/membership-form
This offer is not valid in conjunction with any other discount or promotion Goggles provided to agreed Vision Express/CHECT specification Offer available for a limited period only - redeem voucher in store between April 1-30th, 2013.
Offer open to children affected by Rb only.
Only one pair of goggles issued per child.
Children requiring prescription goggles may be requested to have an eye examination in store before their goggles can be ordered.

 

General information on sports goggles and protective eyewear can be found here.

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  4. Jane Harrison
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  7. Lottie Wilson
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  9. What a weekend to remember - report back from CHECT's 25th party
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  11. Order your back copies of CHECT's InFocus newsletter
  12. Current campaigns
  13. What causes white eye in a photo?
  14. Jobs and opportunities
  15. Christina Rozeik
  16. Georga Gorrell
  17. Pascal Holtz
  18. Tanisha Kalra
  19. Report back on our meet-up at Eureka!
  20. Genetic counselling
  21. About Genetics
  22. 25th anniversary
  23. Find a 25th anniversary event near you
  24. Potter star Walters backs CHECT research appeal
  25. Epidemiological studies of retinoblastoma - final report
  26. The Memorandum of Association
  27. Reporting back from our busiest Annual Members' Day ever!
  28. Accessibility
  29. Maria Tattersall, aged 23
  30. Miguel Pais, aged 15
  31. My story by Christopher Payne, aged 6
  32. Media Marvel
  33. Kelsey's WellChild award
  34. The Paddling Partners - Sandra & Debs
  35. Ocular implants
  36. Richard aged 8
  37. Miguel, aged 11
  38. Danielle aged 10
  39. My story by Isla Firth, age 5
  40. Elaine Birtwistle
  41. Maria Tattersall
  42. Pauline Dawson
  43. Kaye Garwood
  44. Grant Rees
  45. Victoria Payne
  46. Carole Ellison
  47. Ben Revill
  48. Ingrid Svarcina
  49. Veronica Street
  50. Jo Trevett
  51. Justine Duffy
  52. Ann Young
  53. Bill Cooper
  54. Kellie Ascheri
  55. John Ramm
  56. Belinda Plowman
  57. Ronnie Beard
  58. Samantha Rouse
  59. Our trustees
  60. Partners
  61. Press cuttings
  62. Share your story
  63. Notes to the editor
  64. Latest news
  65. News archive
  66. What might happen next
  67. Who to see
  68. Annual reports and accounts
  69. Our staff
  70. Our history
  71. What we do
  72. Support an event
  73. Supporters Form
  74. Professional Form
  75. Why me?
  76. Site map
  77. Accessibility
  78. Privacy
  79. Legal
  80. Contact Us
  81. Cryotherapy and laser
  82. Chemotherapy/Intra-arterial chemo
  83. Radiotherapy & treatments prior to 1990
  84. Screening your child
  85. Planning a baby
  86. Genetic testing
  87. Fun stuff and links
  88. Starting school/nursery
  89. My special eye
  90. Coming to clinic
  91. Story time
  92. Radioactive plaque
  93. Radiotherapy
  94. Enucleation
  95. Intra-arterial chemo
  96. Chemotherapy
  97. Laser
  98. Cryotherapy
  99. My treatment
  100. What is Rb?
  101. My story
  102. What is Rb?
  103. Extras and links
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  105. School/college/work
  106. My story
  107. Who can I talk to?
  108. Radioactive plaque
  109. Radiotherapy
  110. Enucleation
  111. Intra-arterial chemo
  112. Chemotherapy
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  114. Cryotherapy
  115. My treatment
  116. Why me?
  117. test
  118. Our news
  119. Media
  120. Join us
  121. Spreading the word
  122. Adults after Rb
  123. Supporting us
  124. Rb & me (for ages 12-18)
  125. Rb & me (for ages 7-11)
  126. Rb & me (for ages 1-6)
  127. Research
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  132. My story
  133. At school
  134. Radioactive-plaque
  135. Radiotherapy
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  137. Intra-arterial chemo
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  145. Volunteering agreement
  146. Volunteer
  147. Get involved
  148. Legacy
  149. Gift Aid
  150. Give As You Earn
  151. Methods of donating
  152. Our CHECT champions
  153. Upload your event
  154. Online shopping websites
  155. Cards, shirts, pins & things
  156. Fundraising in school
  157. Collecting tins
  158. Fundraising ideas
  159. Family fundraising
  160. Challenge events
  161. Our corporate supporters
  162. Employee fundraising
  163. Working with businesses
  164. How your support can help
  165. Fundraise
  166. Useful links
  167. Meet-ups
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  169. Links to other literature
  170. Scientific Advisory Committee
  171. Application form
  172. How to apply for funding
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  175. Our research philosophy/strategy
  176. Send us your event
  177. Fundraising
  178. Awareness campaigns
  179. Families in the news
  180. Schools/nurseries
  181. Community days
  182. Getting information
  183. CHECT for you
  184. Staying safe
  185. Second primary tumours
  186. Long term effects of treatment
  187. Genetics
  188. Translations
  189. International Rb support groups
  190. Who to contact for the treatment in UK
  191. Enquiries from overseas
  192. Information for professionals
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  200. Bilateral
  201. Enucleation
  202. Radiotherapy
  203. Intra-arterial chemo
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  206. Visits from medical professionals
  207. Grants for equipment
  208. Statementing
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  210. Caring for my child's eyes in school
  211. Time out for treatments
  212. Dino/Tino/other visual aids
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  218. Meet-ups and linking
  219. Financial help
  220. Benefits of membership
  221. Your support worker
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  224. Artificial eyes and implants
  225. After treatment
  226. Radioactive plaque
  227. Radiotherapy
  228. Enucleation
  229. Intra-arterial chemotherapy (or melphalan)
  230. Chemotherapy
  231. Laser
  232. Cryotherapy
  233. Treatment
  234. How can I help my child?
  235. Just diagnosed
  236. About retinoblastoma (Rb)
  237. Childhood Eye Cancer Trust - retinoblastoma support and information
  238. Signs and symptoms
  239. About us
  240. Professionals
  241. Beginners
  242. Getting Help
  243. Parents
  244. Childhood eye cancer trust
  245. Parameters
  246. Sample Sites
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