One of our aims in launching the original CHECT website was that our members could become more involved.
The popular My Story section gives an insight into the lives of a range of people affected by Rb.
We have tried to categorise them into areas of relevance according to difference experiences and treatments to make it easier for you to look through.
We also now have a children’s section, in which we welcome
short stories from children themselves about their experiences,
in their own words. You can read some of our younger members'
contributions under the three different aged sections: 1-6 years;
7-11 years and 12-18 years.
If you would like to contribute your story or encourage your child
to write something and would like more direction please contact
We look forward to hearing from you!
Childhood Eye Cancer Trust
The Royal London Hospital
Pictures would be appreciated.
Click on the links below to read stories on the following topics:
Click here for stories from people affected by unilateral retinoblastoma.
Click here for stories from people affected by bilateral retinoblastoma.
Click here for stories from people affected by chemotherapy.
Click here for stories from people affected by enucleation.
Click here for stories from people affected by intra-arterial chemo (or melphalan).
Click here for stories from people who are visually impaired following retinoblastoma.
Click here for stories from adults who had retinoblastoma as a child.
Click here for stories from grandparents who have been affected by Rb in their family.
Click here for our section for adults who have been affected by retinoblastoma.
'When my child was first diagnosed it made such a difference to me to be able to read through other people’s stories and realise that you do come out the other end of the nightmare we felt we were going through at the time – the stories are so inspirational – over the past four years I have gone back time and time again to read more.’
- Richard Firth