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My story

One of our aims in launching the original CHECT website was that our members could become more involved.

The popular My Story section gives an insight into the lives of a range of people affected by Rb.

We have tried to categorise them into areas of relevance according to difference experiences and treatments to make it easier for you to look through.

We also now have a children’s section, in which we welcome
short stories from children themselves about their experiences,
in their own words. You can read some of our younger members'
contributions under the three different aged sections: 1-6 years;
7-11 years and 12-18 years.

If you would like to contribute your story or encourage your child
to write something and would like more direction please contact
Julie at This e-mail address is being protected from spambots. You need JavaScript enabled to view it.

We look forward to hearing from you!

E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Write:
Childhood Eye Cancer Trust
The Royal London Hospital
Whitechapel Road
London
E1 1BB


Pictures would be appreciated.

 

Click on the links below to read stories on the following topics:

Unilateral

Click here for stories from people affected by unilateral retinoblastoma.

Bilateral

Click here for stories from people affected by bilateral retinoblastoma.

Chemotherapy

Click here for stories from people affected by chemotherapy.

Enucleation

Click here for stories from people affected by enucleation.

Intra-arterial chemo (or Melphalan)

Click here for stories from people affected by intra-arterial chemo (or melphalan).

Visually impaired

Click here for stories from people who are visually impaired following retinoblastoma.

Beyond Rb

Click here for stories from adults who had retinoblastoma as a child.

Grandparents

Click here for stories from grandparents who have been affected by Rb in their family.

Adults after Rb

Click here for our section for adults who have been affected by retinoblastoma.

'When my child was first diagnosed it made such a difference to me to be able to read through other people’s stories and realise that you do come out the other end of the nightmare we felt we were going through at the time – the stories are so inspirational – over the past four years I have gone back time and time again to read more.’
- Richard Firth