For parents whose child has just been diagnosed it can be an extremely stressful and frightening time. The Childhood Eye Cancer Trust can help support you through this time in various ways. Your support worker will chat to you on the ward about how best we can help you.
CHECT has produced a factsheet called ‘Just diagnosed’, one of several useful factsheets available to anyone whose child has just been diagnosed with Rb. This factsheet offers an insight into how other parents felt at the time and how they coped.
You can ask your support worker for the whole pack of factsheets, including information on financial help, holidays, and raising awareness, at the retinoblastoma clinics in either the Royal London Hospital or Birmingham Children’s Hospital.
The ‘Just diagnosed’ factsheet is also downloadable here. See also other pages in this section for further advice.
Advice on telling my child they have been diagnosed with retinoblastoma (Rb)
Advice on how to break the news and cope with the next steps.