When the CHECT team first sat down to consider the new website design one of the key areas we were adamant about creating was a section dedicated to adults who have been affected by retinoblastoma (Rb).
For some the effects of Rb sadly do not end in childhood but stay with them for the rest of their lives. Our new section hopes to provide additional support for adults after Rb, helping them access vital information on genetics, starting a family and other health concerns.
We discuss what genetic counselling is; what people may like to know if they are thinking of having a child, plus we also have some information about why children who have an increased risk of developing retinoblastoma are being screened.
We have also tried to cover tricky issues concerning second primary cancers and staying safe in relation to this, hopefully helping you to access appropriate health care services more easily should you require them in the future. You can just give your health professional a link to the appropriate pages.
Adults after Rb also covers information on services we provide. We run a regular ‘Meet-up’ group. Social meet-ups in the past have included a picnic, punting and local pub in Cambridge; a get together in Manchester and a sailing day in Southampton.