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After treatment

Unfortunately for some children affected by retinoblastoma (Rb) there can often be long-term and even life-long effects on their eyes and vision.

This section contains information on artificial eyes - for children who have had an enucleation - information on visual impairment and education options plus our Adults after Rb section for adults who had Rb as a child and would like further information on looking after themselves and the genetic implcations of the disease.

The Childhood Eye Cancer Trust (CHECT) website now also has dedicated sections for children of different ages as they progress through to adulthood.  This is because we know as people get older they sometimes want to understand more about the condition and treatment they had as a child.

The sections for children and young people have been written at a level which is easy to understand for each age group.  We also have personal stories in each section.

Click on the links to view each section:


Rb & me (for ages 1-6)

Information for 1 to 6-year-olds about Rb, treatment, booklets and children's personal stories.

Rb & me (for ages 7-11)

Information for 7 to 11-year-olds about Rb, treatment, personal stories and fun links.

Rb & me (for ages 12-18)

Information for 12 to 18-year-olds about Rb, treatment, fun links and personal stories.

Adults after Rb

Information about genetics, late effects of treatment, looking after yourself, and our services for adults