• Why we use cookies

    Our website uses 1 cookie. A cookie is a small file of letters and numbers that we put on your device if you agree. These cookies allow us to anonymously distinguish you from other users of our website, which helps us to provide you with a good experience when you browse our website and also allows us to improve our site. The cookies we use are analytical cookies. They allow us to recognise and count the number of visitors and to see how visitors move around the site when they are using it. This helps us to improve the way our website works, for example by ensuring that users are finding what they are looking for easily. By accessing our website you are deemed to have consented to the setting of the cookie on your device.


This section of our website has been specifically written with parents of children who have been diagnosed with retinoblastoma (Rb) in mind.

We have tried to cover everything from the basic explanation of eye cancer, what treatment your child may undergo, what considerations you may face post treatment and what support is out there now to help you through this difficult time.

We also have three different children's sections which are written in an age-appropriate manner and split into different age groups - you may find these useful in helping to explain to your child about their diagnosis, treatment and any long-term effects they may encounter.

If you can’t find the information you are looking for here or have further questions please contact your support worker.

If you are an adult who has been affected by retinoblastoma (Rb) as a child, you may find our section Adults after Rb helpful.

If you are a medical professional seeking more information on the disease and its further implications you may find our Information for professionals section helpful.


About Rb

A basic explanation of retinoblastoma, its effects, treatments available and considerations for your child post treatment.

Getting help

Information on the support service available from the Childhood Eye Cancer trust, how to connect with other families affected by Rb and what financial assistance is available.

Starting or changing nursery or school

We look at the tricky issues some children may face. This section also includes information on caring for artificial eyes in school and education options for visually impaired children.

My Story

Moving accounts from relatives and individuals who have been affected by retinoblastoma, explaining how they coped and the effects Rb has had on their lives.


Further sources of information which you may find of use.