Here is our latest news – you can subscribe to receive a regular bulletin by filling in your details in the login on the bottom left of every page. To read about our members whose stories have appeared in the press, see our latest news page.
Retinoblastoma: a parental perspective
Super campaigner Katy Bishop shares her and her son Owen’s experience of battling with retinoblastoma, and her ongoing mission to raise awareness of the signs and symptoms of Rb. Read Katy's moving article here
Rb dad's band launches video of charity single for CHECT
Rb dad Martin Wilson's British crossover progressive rock band The Room have released their debut video of their song 'Screaming Through The Noise' - which was released earlier this year as a charity single for CHECT. Read more here.
CHECT launches Champions awards
Do you know a little champion? Every parent of a child affected by Rb is acutely aware of the disruption and upset treatment and check-ups can have on not just the patient, but on their siblings too.
We are keen to recognise the outstanding bravery and courage shown by all children affected by Rb and, thanks to the generosity of Credit Suisse, we are now able to invite nominations to the CHECT Champion awards.
For more details on the awards and how to nominate click here.
Red reflex poster updated
As part of our ongoing work to raise awareness among GPs and healthcare professionals we have updated our red reflex poster, previously known as the See Red poster. If you would like a laminated poster to distrbute to a clinic or surgery near you please contact us and we will be happy to post them out to you. The new poster can be viewed here.
We have been contacted by the Department of Health who informed us that, as a result of our campaign, information on the signs of retinoblastoma had now been included in a prominent and relevant section of the NHS Choices website.
The information has been uploaded into the pregnancy and baby section of the site, where concerned parents are now directed for more information on symptoms of serious illnesses
A fantastic result for everyone involved in the campaign! See here for more on the campaign.