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Share your story


The Baulch family highlighted Felix’s plight to raise awareness of retinoblastoma


If you or a family member has been affected by retinoblastoma and you would like to help raise awareness of retinoblastoma by telling your story to the media please let us know and we can make contact with the media on your behalf and advise you on what to expect.


You may find our News archive and Families in the News sections with links to media coverage of other Rb families useful to see how others have shared their story.


If you are already in contact with the media, your contact may find our Notes to the Editor section useful as it outlines all the up-to-date facts on retinoblastoma.


Any media coverage Childhood Eye Cancer Trust (CHECT) members can help with is always greatly appreciated in our united effort to raise awareness of the signs and symptoms of retinoblastoma.


Contact us the office if you would like to tell your story on 0207 377 5578 or at This e-mail address is being protected from spambots. You need JavaScript enabled to view it.


Here are some comments from some Childhood Eye Cancer Trust members who have worked with the media.


“I’d never done press work before and was really nervous to start with but the journalists I dealt with knew how important it was to get the message out there, which made me feel a lot more relaxed about the whole thing.

“Whether its TV or papers, they will edit everything so don’t worry if you fluff your words, they use the best bits and won’t make you look silly.

“The fact they are asking for your story is enough to know they have your best interests at heart.” – Katy Bishop



“I found sharing my experience very therapeutic as not only did I get to talk about what happened to my daughter and how it made me feel, but I also got a lot of comfort knowing hopefully it may help another family in the future.” – Richard Firth


Notes to the Editor

A collection of facts and figures about retinoblastoma and treatment

Press cuttings

A collection of press cuttings with past stories from CHECT and its members

Latest news

Find out the latest published news featuring CHECT and its members


This page is for journalists and the media.