• Why we use cookies

    Our website uses 1 cookie. A cookie is a small file of letters and numbers that we put on your device if you agree. These cookies allow us to anonymously distinguish you from other users of our website, which helps us to provide you with a good experience when you browse our website and also allows us to improve our site. The cookies we use are analytical cookies. They allow us to recognise and count the number of visitors and to see how visitors move around the site when they are using it. This helps us to improve the way our website works, for example by ensuring that users are finding what they are looking for easily. By accessing our website you are deemed to have consented to the setting of the cookie on your device.

CHECT for you

The Childhood Eye Cancer Trust (CHECT) provides support to people with many different associations with retinoblastoma.  Some people had the condition as a child and are now adults, others have a relative who has been affected.  CHECT aims to support adults who had Rb as a child by providing useful, accurate and up to date information which is available here on our website.  This is available in the section 'Adults after Rb' and is designed specifically for adults.

The Childhood Eye Cancer Trust can also play a part in helping members to get the right treatment from the health service.  The trust knows that many people personally affected by Rb will, as they become adults, need access to genetic counselling and oncology follow up clinics. They may also need understanding and support from their GP when they raise any concerns over late effects of treatment and an increased risk of second primary cancers.  CHECT is working to increase the knowledge and awareness of front line healthcare professionals regarding these issues but if you find you need to give your own GP more information on these subjects then you might consider giving them a copy of the following articles:

All three were written to increase awareness with medical professionals of the late affects of retinoblastoma, it’s treatment and the need for genetic counselling in some cases.

Carter, J (2010) Supporting patients after retinoblastoma. Practice Nursing 21(1): 38-40.

paper icon Click here to download this article


Carter, J (2009) Retinoblastoma - The issues faced by adults who had retinoblastoma as a child, GP Magazine 17/04/09: 41-43.

Carter, J (2011) Retinoblastoma - The issues faced by adults who had retinoblastoma as a child, GP [online]

Avaliable at: [Accessed 14/07/2001]

paper icon Click here to download this article


Halford, L et al. (2008) Retinoblastoma for life. Focus - Royal College of Ophthalmologists Summer: 5-6.

paper icon Click here to download this article





Please click on the links below for various sections of the website.


Benefits of membership

Details on the benefits of becoming a member of the Childhood Eye Cancer Trust and what services we offer.

Adults after Rb

Click here for our section for adults who have been affected by retinoblastoma.


Click here to find out about our social events.

My story

Moving accounts from relatives and individuals who have been affected by retinoblastoma, explaining how they coped and the effects Rb has had on their lives.

Supporting us

Find out how you can help us through fundraising, getting involved or donating.