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What we do


The Childhood Eye Cancer Trust (CHECT) is the only UK charity dedicated to providing support to families affected by retinoblastoma (Rb). Our support workers are here to help families get through diagnosis and treatment, and are available during clinics or later by phone and email.

Juliette Carter on phoneWe have a range of information and resources available for adults who have had Rb, and also produce newsletters (three times a year) and e-newsletters (each month) to help keep our members and supporters up to date. We also host an Annual Members' Day, where members and professionals are able to meet and discuss issues important to them.

Through our linking service, we can put people in touch with others who share a smiliar experience. Our CHECT networks also organise family get-togethers.

We work closely with our members to help raise awareness of Rb nationally. We believe that everyone should know children can get cancer in their eyes, and it is treatable. We run campaigns to reach the public and tell them about retinoblastoma (Rb).

We also aim to target health professionals with information about this rare cancer, which can help them to make an early referral. We work closely with the retinoblastoma teams at the Royal London Hospital and Birmingham Children's Hospital, and related charities and bodies.

A considerable amount of the money raised by Childhood Eye Cancer Trust also goes towards funding research projects specifically related to retinoblastoma.

To find out more about CHECT, and Rb, as well as the support services we offer, please visit the relevant sections of the website.

Our history

A brief account of the origins of CHECT, which started in 1984 as FISH, before becoming the Retinoblastoma Society and then the Childhood Eye Cancer Trust.

Our staff

Meet the members of our small but effective team and read their profiles to find out how they can help you.

Our trustees

Read about our board of trustees and what led them to volunteer their time and experience to this vital role.

Our partners

Find out who has signed up to support the Childhood Eye Cancer Trust in the commercial world.

Annual reports and accounts

The facts and figures and inner workings of the charity laid out for you to explore.

Contact us

Details of how you can get in touch with us, whether you are looking to fundraise, need information or would like support for your family.