The Childhood Eye Cancer Trust (CHECT) is the only UK charity dedicated to providing support to families affected by retinoblastoma (Rb). Our support workers are here to help families get through diagnosis and treatment, and are available during clinics or later by phone and email.
We have a range of information and resources available for adults who have had Rb, and also produce newsletters (three times a year) and e-newsletters (each month) to help keep our members and supporters up to date. We also host an Annual Members' Day, where members and professionals are able to meet and discuss issues important to them.
Through our linking service, we can put people in touch with others who share a smiliar experience. Our CHECT networks also organise family get-togethers.
We work closely with our members to help raise awareness of Rb nationally. We believe that everyone should know children can get cancer in their eyes, and it is treatable. We run campaigns to reach the public and tell them about retinoblastoma (Rb).
We also aim to target health professionals with information about this rare cancer, which can help them to make an early referral. We work closely with the retinoblastoma teams at the Royal London Hospital and Birmingham Children's Hospital, and related charities and bodies.
A considerable amount of the money raised by Childhood Eye Cancer Trust also goes towards funding research projects specifically related to retinoblastoma.
To find out more about CHECT, and Rb, as well as the support services we offer, please visit the relevant sections of the website.