Joy was appointed as chief executive of CHECT in March 2011. Prior to this she was with Samaritans as director of services and before that with the Alzheimer's Society as deputy director of branch services. Joy originally trained as a nurse and went on to specialise in intensive care nursing. She managed the intensive care unit for adults and children at Bedford Hospital for four years before taking a break from work to have her three children.
Julia is based in Birmingham and visits Birmingham Children's Hospital (BCH) where she makes contact with families having treatment for Rb. She works nationally, introducing new families to family contacts, linking old and new members, providing information and helping with any Rb-related matter. Julia also teaches pottery to special needs groups and works with her local community. She is still responsible for her local Millennium Green project but has retired from her boat building business.
Lesley joined CHECT in August 2012 as a support worker based in the London office and visiting the Rb clinics at The Royal London Hospital. Her role is to make contact with families whose children are having treatment for Rb or undergoing screening, to offer support and to set up a support service for teenagers affected by Rb.
Prior to this Lesley worked for Barnardo’s as a children’s services manager in the East of England. Lesley’s background is in nursing, she worked mainly as a children’s nurse with many years nursing children with cancer at The Royal Marsden Hospital and in Cambridge.
In her spare time she enjoys singing with a local contemporary choir.
Julie joined CHECT in August 2010 as our London-based support worker and in 2012 changed roles to concentrate on communications and raising awareness. She is also the trust's contact for press enquiries. Julie's daughter was diagnosed with Rb in 2007 and underwent enucleation just after her 2nd birthday. Julie's background is in journalism she has previously volunteered for the National Childbirth Trust, editing the branch newsletter and providing admin support for the Slough Deaf Centre. Julie enjoys gardening and spending time with her family.
Juliette Carter - Currently on maternity leave until March 2014
Juliette Carter joined CHECT as a support worker/information officer in September 2006. As information officer Juliette is responsible for raising awareness of Rb amongst the public and with health professionals and others who come into contact with children or adults who have had the disease. Prior to taking this position with CHECT, Juliette worked as a senior parent advisor for the charity Contact a Family and has also worked at the Royal London Hospital as a children's nurse. Juliette enjoys drawing and Lindy Hop dancing in her spare time.
Information & research officer (maternity cover)
Petra Maxwell joined CHECT in 2013 as information and research officer to cover Juliette Carter’s maternity leave. Petra is responsible for raising awareness of Rb with health professionals who come into contact with children who have the disease. Petra’s background is in charity communications, and she most recently worked at Action for Blind People as PR Manager.
Supporter engagement & fundraising manager
Fiona Heath joined CHECT in April 2010 in the part-time role as fundraising manager. Fiona has enjoyed many years working for charities such as the RNLI and Tall Ships Youth Trust, having begun her career in sales and marketing. Fiona, who commutes from Petersfield said "I really enjoy working with CHECT's members and volunteers and am not only humbled by the amazing work done by this wonderful charity but also by the courage and boundless enthusiasm demonstrated by its supporters." In her spare time Fiona enjoys DIY, gardening and reading.
Corporate & major donor fundraising manager
Emma joined CHECT in September 2013, having previously worked for an educational charity for ten years. Her first day with the organisation was the annual conference, which Emma says left her feeling really inspired. She will be looking to develop new partnerships with businesses and individuals interested in supporting the work that we do, building on the very successful relationship already developed with Vision Express. "I would love to hear from anyone with suggestions, or if you know of a company interested."
Jenny Seaton Ulliott
Jenny joined CHECT in October 2013 as Office Manager and provides administrative support to the CHECT team and board of trustees, as well as assisting with information management, communications and organising events. Before joining CHECT Jenny had a variety of administrative roles in the public and not for profit sectors. She lives in Hatfield with her husband and enjoys international travel.