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Jobs and opportunities


Could you help shape the future of a small but dynamic charity that supports children and individuals affected by eye cancer by becoming a trustee?

We are particularly looking for trustees with experience in; Fundraising/income generation; Finance and investments; Influencing (preferably within the health care sector) and Campaigning.

In addition to this we are seeking a GP to join our board, preferably with a connection to policy making or experience with commissioning.


Retinoblastoma is a rare cancer which affects the growing retina in the eyes of children under the age of five.  The survival rate is high, however diagnosis and treatment is a very stressful time for families and the long-term effects of treatment; genetic implications; and risks of second malignancies later in life means the charity’s activities have broadened and grown year on year to meet these demands.


About the Childhood Eye Cancer Trust (CHECT)

CHECT is a small but growing UK-wide charity for families and individuals affected by retinoblastoma. Established for more than 27 years, the charity provides support and information, funds research and raises public awareness of this rare cancer. We also seek to influence policy to improve diagnosis, treatment and follow up experiences for those affected. Our current streams of work include developing support services for teenagers and young people and raising awareness of this devastating cancer amongst frontline healthcare professionals. To learn more go to


The charity is regulated by the Charity Commission and Companies House because it is also a company limited by guarantee.  It employs nine members of staff and current turnover is approximately £400,000 per annum.


The Childhood Eye Cancer Trust is governed by Trustees/Directors who are responsible for the long-term success and viability of the charity.  They are not required to undertake day to day operational or management activities.


  • Trustees are elected to the post for three years, and can stand for a further three years if re-elected
  • Training, induction and support is provided for all new trustees.
  • The board is made up of up to 15 Trustees. Currently approximately three quarters of these have experience of Rb in some way and all contribute by bringing other professional skills and experience.
  • There are six meetings a year; four are held in London and two are held by conference call. All are held on a Saturday morning.
  • Trustees are expected to contribute their expertise and experience which involves some work between meetings and membership of one of the three sub-committees – currently Finance and Risk, Fundraising and the Scientific Advisory Committee.
  • The Annual General Meeting is held in September as part of a national member’s event.
  • Trustees are not paid however expenses are reimbursed for attending meetings.


Being a Trustee of a small charity can be a very rewarding experience and you would play a key role in helping to take this growing charity forward as we start to set the strategic direction for the next 3 years.

To find out more about the charity and its work, visit or telephone Joy Felgate, Chief Executive, for an informal, confidential conversation, or by email to This e-mail address is being protected from spambots. You need JavaScript enabled to view it. . Please find the job description and person specification below.


Job Description


Person Specification