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About us

The Childhood Eye Cancer Trust has been a registered charity since 1987 and was formerly known as The Retinoblastoma Society.

Our aims are:

  • To provide information and support to individuals and families with retinoblastoma (Rb)
  • To raise awareness of Rb
  • To raise funds for research
  • To influence professional bodies to ensure optimum service for Rb patients

We achieve these by:


C hallenging the way in which healthcare is delivered in order to derive optimum service delivery for patients. Funding research projects to extend the boundaries of knowledge.

H elping those affected by retinoblastoma by providing support and information, access to a self-help network and links to other related organisations.

E ducating health professionals and others about retinoblastoma and the implications for genetics and other cancers through awareness raising campaigns, literature and training.

C aring for the individual and providing services tailored to their needs at different life-change stages.

T ransforming public perception of eye cancer in children, to raise awareness and take away the fear.
In this section you will find the following useful information:

What we do

The Childhood Eye Cancer Trust (CHECT) is dedicated to providing support to families affected by retinoblastoma (Rb), funding research and raising awareness.

Our history

A brief account of the origins of CHECT, which started in 1984 as FISH, before becoming the Retinoblastoma Society and then the Childhood Eye Cancer Trust.

Our staff

Meet the members of our small but effective team and read their profiles to find out how they can help you.

Our trustees

Read about our board of trustees and what led them to volunteer their time and experience to this vital role.

Our partners

Find out who has signed up to support the Childhood Eye Cancer Trust in the commercial world.

Annual reports and accounts

The facts and figures and inner workings of the charity laid out for you to explore.

Contact us

Details of how you can get in touch with us, whether you would like support for your family, need information or are looking to fundraise.