My story

Our younger members of the Childhood Eye Cancer Trust have written their own stories about how retinoblastoma has affected their lives.
If you would like to tell us your story we would love to hear about it and publish it on our website. You can email your stories to This e-mail address is being protected from spambots. You need JavaScript enabled to view it.
Please try and include a recent picture of yourself. Click on the names of the links below to read about our members' stories.

Christopher, aged 6

Christopher answers some questions on how he feels about his special eye and how his teacher helps him look after it at school.

Isla, aged 5

Isla tells in her own words what she told her classmates about her magic eye and how she learnt to take her eye out and replace it again.

Danielle, aged 10

Danielle shares her story about growing up with Rb and the effect it can have.

Victoria, aged 11

Victoria gives her accounts of her experience of retinoblastoma, how she tackles protecting her artificial eye and what she remembers of her hospital visits.

Miguel, aged 11½

Miguel is from Portugal. He wrote to us to tell us about his life growing up with an artificial eye.

Richard, aged 8

Richard had treatment for bilateral Rb and talks about himself and going on a special holiday.