Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of the Childhood Eye Cancer Trust
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
London Marathon Runners 2024!
We wish the best of luck to our #TeamCHECT London Marathon runners who will be pounding the streets of London on Sunday 21 April 2024!
Beyond Rb event: Kelham Island Museum
CHECT Head of Support Petra Maxwell and Fundraising Manager Priyanka Kotecha recently attended one of our Beyond Rb meet-ups. Here, they discuss how the day went: Our Beyond Rb meet-up in February took place on a beautiful, sunny day at the Kelham Island Museum in...
Amazing Maisy
We spoke to author Kay Lewis about her first book, *Amazing Maisy. Kay discusses what it was like when Maisy was diagnosed with retinoblastoma in her book, and what her life is like now, in a bid to raise awareness of retinoblastoma.
Michael’s Journey: From retinoblastoma to fitness expert
For World Retinoblastoma Week, we spoke to Michael about his journey from the childhood eye cancer, enucleation and beyond! Background History and Diagnosis My name is Ayokunle Michael Omotayo (Michael), and I was born on 1st October 1992 in Kings College Hospital,...
Frankie’s artificial eye fitting
We spoke to Robyn, whose daughter Frankie recently had a new artificial eye fitted. She tells us about the experience.
World Book Day: How books helped me when I was in hospital
We spoke to Emily Ann Davison - the author behind 'The Blue Umbrella' and 'Every Bunny is a Yoga Bunny' about the power of reading for World Book Day. World Book Day is always such an exciting time of year where people come together to celebrate the magic of books and...