Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of CHECT
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
Amazing Maisy
We spoke to author Kay Lewis about her first book, *Amazing Maisy. Kay discusses what it was like when Maisy was diagnosed with retinoblastoma in her book, and what her life is like now, in a bid to raise awareness of retinoblastoma.
In memorial: Tony Dollery
Shaun discusses his late father Tony, who raised over £6000 for CHECT by making and selling hedgehogs and bird boxes. All of us at CHECT pass on our best wishes to Tony’s family, as we fondly remember Tony for his kind generosity.
Ffion Miles Bursary 2024
If you or your child have a love for music, you could be the fourth person to benefit from The Ffion Miles Music bursary – in memory of the late Ffion Miles. Ffion was not only known for her love of music, but her passion towards helping those who had retinoblastoma...
Frankie’s artificial eye fitting
We spoke to Robyn, whose daughter Frankie recently had a new artificial eye fitted. She tells us about the experience.
World Book Day: How books helped me when I was in hospital
We spoke to Emily Ann Davison - the author behind 'The Blue Umbrella' and 'Every Bunny is a Yoga Bunny' about the power of reading for World Book Day. World Book Day is always such an exciting time of year where people come together to celebrate the magic of books and...
“I spotted cancer in my baby’s eye as I cooked dinner”
A mum from Gillingham in Kent is urging other parents to look out for the tell-tale signs of eye cancer this Rare Disease Day, after their three-month-old son was diagnosed with retinoblastoma, a rare eye cancer that typically affects children under the age of...