Supporting families affected by retinoblastoma
The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma, a rare form of eye cancer. We provide support, raise awareness and fund research into prevention and treatment.
Learn the signs and symptoms of retinoblastoma
Symptoms
Retinoblastoma is highly treatable but early diagnosis is vital. The two main symptoms are a white glow and a squint. If your child has these, don’t ignore them.
The white glow
Seeing a white glow in the eye of a child in a photograph or in certain lighting can be really worrying. Find out what causes white eye and what to do if you see it.
Get support
We provide ongoing support and information to anyone affected by retinoblastoma. If you need to talk, get in touch with one of our support workers today.
Become a member of the Childhood Eye Cancer Trust
Becoming a member of the Childhood Eye Cancer Trust (CHECT) is easy, FREE and is open to anyone affected by retinoblastoma, their friends and family, all supporters of CHECT and health professionals.
Family event: Discover Children’s Story Centre
On 23 March, 14 CHECT families braved the rain for a meet-up at Discover Children’s Story Centre in East London.
New CHECT research announced
We are delighted to be able to announce our latest retinoblastoma research award to Professor Yellapantula for her project “Prognostic stratification and early detection of relapsed retinoblastoma using aqueous humour based cfDNA screening”.
Ivy’s glittery eye!
We were delighted to receive this heartwarming message from Ivy's mum Ewelina, after Ivy lost her eye to retinoblastoma. Ewelina said, "My daughter got inspired by other kids showing off their special artificial eyes so she asked her ocular prosthetist in Eye Pavilion...
Ivy’s glittery eye!
We were delighted to receive this heartwarming message from Ivy's mum Ewelina, after Ivy lost her eye to retinoblastoma. Ewelina said, "My daughter got inspired by other kids showing off their special artificial eyes so she asked her ocular prosthetist in Eye Pavilion...
Michael’s Journey: From retinoblastoma to fitness expert
For World Retinoblastoma Week, we spoke to Michael about his journey from the childhood eye cancer retinoblastoma, his enucleation and beyond! Background History and Diagnosis My name is Ayokunle Michael Omotayo (Michael), and I was born on 1st October 1992 in Kings...
Frankie’s artificial eye fitting
We spoke to Robyn, whose daughter Frankie recently had a new artificial eye fitted. She tells us about the experience.